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Are you seeking information and further guidance on how to make decisions together about end of life care? Or perhaps you have recently lost a loved one and need help with immediate practical, legal, and financial issues as well as coping with grief. Whatever the situation, time will be precious to you. There is already a wealth of information for carers about end of life care, both on the internet and in leaflet form; however, it is sometimes difficult and time-consuming to find and work through. You and the person you care for will come across a lot of confusing terms and language when first receiving a diagnosis. In particular, there is a lot of confusion about what is palliative care and what is end of life care. A life-limiting illness is an illness for which there is no cure, for example, motor neurone disease, dementia, or advanced cancer. Sometimes this is referred…

be nearing the end of their life, they may be given NHS continuing healthcare on a fast-track basis. See paying for care for more information. When thinking with the person you care about where to receive end of life care go to Choosing where to be cared for . Hospice care You may think that a hospice can only provide care when someone is about to die. This is a myth; as hospices can provide care for anyone with a terminal illness, sometimes from the time they receive a terminal diagnosis. In other words, hospices provide palliative care including end of life care. The person you care… or they may need to go into hospital in an emergency. Decisions about their end of life care may be made by staff in Accident and Emergency or by an assessment unit or ward. The hospital may have a palliative care unit or team where staff will help to control symptoms and provide emotional support…

Funding end of life care can be expensive, not just for the person you care for but also for you as the carer. The person you care for may have had to give up work because they are too unwell and/or you may have had to give up work to provide the care they need. There are a range of sources… organisations and local charities that could provide help. NHS funding The NHS may fund nursing care costs in certain circumstances for the person you care for as they approach end of life. There are two different types of funding: NHS Continuing Healthcare : under this scheme, the NHS pays for care home…. As well as many national and local charities providing information and advice on end of life care, some can also provide free support, practical help such as a sitting service, transport to medical appointments, and one-off grants. Hospices can also provide free care for those nearing end of life…

you like this to be in your own home, at the hospital or hospice, or at the local social care teams office? Prepare for your carer’s assessment by thinking about what you want to cover and discuss with the assessor. Be honest and realistic about the impact of your end of life caring role… of life care to adults in Surrey are rolling out the use of a Carers Support Needs Assessment Tool . This short simple tool is designed to enable carers to identify what support they need to help them provide palliative and end of life care for a family member or friend. It is not a substitute…. As long as your life is affected in some way by your caring role you are entitled to an assessment. If there are other people in your family providing support to the same person they too may benefit from a carer’s assessment. A carer’s assessment isn’t rationed to one per cared for person. If you…

and Handling service provides safe solutions for carers who carry out moving and handling as part of their role. This support is free. Our mental health is also very important when providing end of life care. So talking about your feelings and not bottling everything up is vital. You may have a very…

relationships, social activities, education, religious, spiritual and cultural beliefs and values influencing care. Record of significant discussions with child or young person and their parent carers. Agreed treatment plans for end of life care and objectives. 24 hour access to pain… Here’s what you should expect as a parent carer in terms of providing care to your child and ensuring you and your family have the support you need for providing quality family life. Child and family assessment Your child should receive a multi-disciplinary and multi-agency assessment as soon… the best family life possible. It is a working document that is shared with professionals involved in your child’s care and provides the following details: Services and support needed to meet the assessed needs​ of your child, you and your family, including other children in your family. What…

If you are under the age of 18 and providing care to a terminally ill relative then you are a ‘young carer’. If you are between the age of 18 and 25 then you are a ‘young adult carer’. Both young carers and adult young carers take on practical and emotional caring responsibilities that would normally be expected of an adult. You are very likely to have a number of worries as a young carer or young adult carer looking after a family member approaching end of life, which are perfectly normal and it is important that you are able to talk to someone about these: What has caused the illness, was it my fault and can I catch it? Why has it happened to us? What can I do to make him/her feel more able to deal with the illness? How will the illness get worse and when will he/she die? Who will look after me? If I tell anyone will I go into care? What do we do for money? What…

at home who is approaching the end of life then they will be able to be more understanding with any school pressures and try to help. You may find it easier for your parents or other family members to tell the school. It is important the school know as they may have: A school counsellor for you… and chatrooms. In particular, consider contacting the local charity Jigsaw which specialises in giving support to young people caring for a person who is approaching end of life or who are grieving for a relative. If you have just lost a parent, so you don’t feel alone, listen to other young…

Adaptations can range in scale and cost. It might be as small as fixing an intercom or as large as an extension to the home. Your local social care team may give financial support for minor adaptations. You may also be entitled to financial help with more major adaptations via a Disabled Facilities Grant. Go to Funding end of life care for more information. Things to think about Make sure the equipment works not just for the person but also for you. Carers UK has a room by room guide on types of equipment that may or may not help. Any decisions about equipment and adaptations also need to take into account the risks to your own physical wellbeing, particularly where moving and handling of the person is involved. The carers moving and handling team are able to give you details on how to access a back care assessment by a back care advisor as well as training on how to move…

can help , including a large print and easy read guide. When the person is reaching the end of their life, doctors and nurses will advise on how best to minimise disturbance and distress and if some or many of the medications should be stopped as they will no longer be of benefit or are difficult… under control. Attached to the syringe is a long piece of plastic tubing with a small needle at the end, which is inserted under the person’s skin and secured by a dressing. The medication is then delivered very slowly into the arm or other suitable part of the body. A nurse will check the driver…