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You may need specialist aids and equipment to care for your child. You and your child may be assessed by an Occupational Therapist from your primary care trust or children’s team who can inform you about the options and services open to you. Any aids and equipment should be included in your Child…

You and your child’s transport needs will be a crucial part of your child and family care plan. Getting the right help with transport issues can improve daily family life. You can ask your child’s care team about getting driving lessons, accessing specially adapted cars to take bulky equipment …

With advances in medicines and technology more and more children with life limiting or life threatening conditions are now living into adulthood. Transition into adulthood is not a one off event but is a process that takes place during your child’s teenage years and should start at around 14 ye…

Surrey Short Breaks for Disabled Children funds voluntary organisations and SEND schools to provide short break services, including after school clubs, holiday schemes, home-care and more. The Surrey Children’s Disability Register is a voluntary register for a disability or impairment aged 0 to…

If you are under the age of 18 and providing care to a terminally ill relative then you are a ‘young carer’. If you are between the age of 18 and 25 then you are a ‘young adult carer’. Both young carers and adult young carers take on practical and emotional caring responsibilities that would norm…

Local hospice The person you are caring for may have a key professional at a local hospice and they will understand how you are feeling as they meet many young carers. If you are caring for a sibling Christopher’s Children’s Hospice offers support to the whole family including sibling groups. Ac…

When a person receives a terminal diagnosis it can create a wide range of emotions for them and you as their family carer. You and the person may feel angry, may feel it is unfair, may feel sad, shocked, or in denial. Living with a terminal illness can sometimes make family relationships diffic…

Equipment Equipment can be bought directly from a specialist supplier or household shop without an OT assessment. This might include more minor equipment items such as a raised toilet seat, pressure mattress, bath hoist, over bed table, wheelchair, crutches, or a hospital style bed. If not having…

Adaptations can range in scale and cost. It might be as small as fixing an intercom or as large as an extension to the home. Your local social care team may give financial support for minor adaptations. You may also be entitled to financial help with more major adaptations via a Disabled Faciliti…

Whilst the person you care for is still able to swallow, tablets or liquid medicine will continue to be prescribed by their GP. If the person wishes you to help administer their medication then make sure you are giving the medicines at the right time of day. If you are giving them at the wrong ti…