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Are you seeking information and further guidance on how to make decisions together about end of life care? Or perhaps you have recently lost a loved one and need help with immediate practical, legal, and financial issues as well as coping with grief. Whatever the situation, time will be precious …

You may be trying to juggle a job with your caring role which is putting you under a lot of pressure and stress. There are statutory rights for carers under the Equalities Act 2010. As you are looking after someone who is terminally ill, you are protected from discrimination because of your carin…

If you are caring for a person with a terminal illness, it can be difficult to find time to think about your own health needs. However, by ignoring your own health needs you may become unwell yourself and be unable to provide the care and support that you want to. If feeling stressed you may fi…

As a parent carer there will be lots of things to think about when you are told your child has a life limiting or life threatening condition. Getting a diagnosis If you have just heard the news that your child has a life-limiting or life-threatening condition you will be in a state of shock and …

It is likely that your child will have been diagnosed in a hospital setting. The time that your child is able to return home will vary depending on the nature of your child’s illness. It may be your child needs immediate medical attention following diagnosis or your child may be able to go home s…

It may be that school is still a major focus of their lives. It is important to keep providing your child, as far as is possible, the opportunity to learn, develop, play and experience a normal life. School age children should be enabled to attend their own school for as long as they can, so that…

You may need specialist aids and equipment to care for your child. You and your child may be assessed by an Occupational Therapist from your primary care trust or children’s team who can inform you about the options and services open to you. Any aids and equipment should be included in your Child…

If you are under the age of 18 and providing care to a terminally ill relative then you are a ‘young carer’. If you are between the age of 18 and 25 then you are a ‘young adult carer’. Both young carers and adult young carers take on practical and emotional caring responsibilities that would norm…

Local hospice The person you are caring for may have a key professional at a local hospice and they will understand how you are feeling as they meet many young carers. If you are caring for a sibling Christopher’s Children’s Hospice offers support to the whole family including sibling groups. Ac…

When a person receives a terminal diagnosis it can create a wide range of emotions for them and you as their family carer. You and the person may feel angry, may feel it is unfair, may feel sad, shocked, or in denial. Living with a terminal illness can sometimes make family relationships diffic…