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Are you seeking information and further guidance on how to make decisions together about end of life care? Or perhaps you have recently lost a loved one and need help with immediate practical, legal, and financial issues as well as coping with grief. Whatever the situation, time will be precious …

There may be a number of people who become involved in the person you care for’s end of life care and the provision of support to you as their carer. The person you care for may receive support from some or all of the following people, and you and the person you care for can ask questions to any …

Carer’s Assessment If you are 18 years and over and are providing care to someone 18 years and over you are entitled to an assessment of your own needs. This assessment will be carried out by your local adult social care team. How much care you provide and how much money you have is irrelevant. A…

You may be trying to juggle a job with your caring role which is putting you under a lot of pressure and stress. There are statutory rights for carers under the Equalities Act 2010. As you are looking after someone who is terminally ill, you are protected from discrimination because of your carin…

If you are caring for a person with a terminal illness, it can be difficult to find time to think about your own health needs. However, by ignoring your own health needs you may become unwell yourself and be unable to provide the care and support that you want to. If feeling stressed you may fi…

As a parent carer there will be lots of things to think about when you are told your child has a life limiting or life threatening condition. Getting a diagnosis If you have just heard the news that your child has a life-limiting or life-threatening condition you will be in a state of shock and …

It is likely that your child will have been diagnosed in a hospital setting. The time that your child is able to return home will vary depending on the nature of your child’s illness. It may be your child needs immediate medical attention following diagnosis or your child may be able to go home s…

Here’s what you should expect as a parent carer in terms of providing care to your child and ensuring you and your family have the support you need for providing quality family life. Child and family assessment Your child should receive a multi-disciplinary and multi-agency assessment as soon as…

As a parent our natural instinct is to protect. This may mean you want to delay talking to your child about their diagnosis and prognosis for as long as possible. However, research has shown that it is better to have honest and open conversations as early on as possible for the following reasons:…

It may be that school is still a major focus of their lives. It is important to keep providing your child, as far as is possible, the opportunity to learn, develop, play and experience a normal life. School age children should be enabled to attend their own school for as long as they can, so that…